In the past decade, the human rights violations, ranging from stigma and discrimination to acts of violence and attacks, experienced by persons with albinism have reached global attention, calling for immediate solutions and longer-term interventions to focus on the root causes. In April 2015, the Human Rights Council adopted the A/HRC/RES/28/6 resolution without a vote… Continue reading Our Research-Advocacy-Policy Transdisciplinary Network
Author: Meghann Buyco
Mother’s Day Celebration with Africa Albinism Network
We invite you to enjoy a recent video created for Mother’s Day by the African Albinism Network. The video celebrates the resilience of mothers impacted by albinism, with team member Perpetua Senkoro sharing her story. Happy Mother's Day! https://www.youtube.com/watch?v=_2zm3I6aaaw Reference Africa Albinism Network. (2022). Mother's day celebration. https://www.youtube.com/watch?v=_2zm3I6aaaw
Virtual Faith Leaders’ Summit in Tanzania
During our fieldwork in Tanzania in 2019 for the Mothering and Albinism project, we heard repeatedly that faith leaders have a great influence in their community in providing support, education, and advocacy. A Muslim faith leader stated that “religious leaders already have the mandate to go deeper into all segments of the society…they are listened… Continue reading Virtual Faith Leaders’ Summit in Tanzania
A Storytelling Film Project to Centre the Voices of Tanzanian Mothers impacted by Albinism
Storytelling in film is one way that academic research can be communicated to the public, so social change can follow (Karabanow & Naylor, 2015; Richmond, 2016; Sharma, Reimer-Kirkham, & Meyerhoff, 2011). How can telling stories through film change community attitudes? Their voices: Upendo wa Mamas (‘Mother’s Love’ in Swahili) is a support and income generating… Continue reading A Storytelling Film Project to Centre the Voices of Tanzanian Mothers impacted by Albinism
Canadian Association for Global Health (CAGH) Conference Poster Presentation – November 2021, Ottawa, Canada
This past November 2021, we took the opportunity to present our Mothering and Albinism research at the premier Global Health conference in Canada with a broad global reach. First, we provide some background about the Canadian Conference on Global Health. For the first time, the joining of two predecessors, the Canadian Society of International Health… Continue reading Canadian Association for Global Health (CAGH) Conference Poster Presentation – November 2021, Ottawa, Canada
Leveraging technology: How NVivo™ is supporting our qualitative data analysis
Organizing data for a large research project typically poses a challenge, particularly when data includes various types of files (e.g., transcripts from interviews, academic literature, grey literature, and photos) (Houghton, Murphy, Meehan, Thomas, Brooker & Casey, 2016). We have chosen to use NVivoTM software to help organize our data as well as assist with analysis.… Continue reading Leveraging technology: How NVivo™ is supporting our qualitative data analysis
My journey as a research assistant and person with albinism….
People with albinism are different, yet they are not (Meghann Buyco).