Sheryl Reimer-Kirkham, RN PhD (Project Lead)
Sheryl Reimer-Kirkham is a Professor and Dean of Nursing at Trinity Western University, Canada. Her research is in the area of plurality and equity in healthcare, focusing on the intersections of religion, spirituality, race, class, and gender. She leads an international, interdisciplinary program of research on albinism, spiritual/cultural beliefs, and human rights. See more
Barbara Astle, RN PhD (Project Co-Lead)
Barbara Astle is a Professor and the Director of Graduate Studies at the School of Nursing at Trinity Western University, Canada. She has focused her academic career in the field of global health and health equity. Using critical perspectives and qualitative/participatory action research methods, she has published extensively on nursing and global health education, global health education partnerships, competency-based curriculum in global health, and principles for global health research. She is the Co-Director of the TWU Centre of Equity and Global Engagement and the Co-Chair for the Consortium of Universities for Global Health (CUGH) Global Health Competency Sub-committee. See more
Ikponwosa Ero, JD (Project Co-Lead)
Ikponwosa Ero, herself a person with albinism, is a Human Rights lawyer. She was appointed as the first United Nations (UN) Independent Expert on the enjoyment of human rights by persons with albinism from 2015 to 2021. She is currently the Director, Human Rights Advocacy for Under the Same Sun (UTSS) and Technical Adviser, Africa Albinism Alliance. She has worked extensively on issues about the human rights of persons with albinism, including serving as the international advocacy and legal officer for UTSS in Canada and Tanzania. She was instrumental in the writing and adoption of nine international human rights resolutions on albinism, including at the Human Rights Council, at the General Assembly, and at the African Commission for Human and Peoples’ Rights.
Ramadimetja Shirley Mooa, RN PhD (Project Co-Lead)
Ramadimetja Shirley Mooa is a professor and head of the Nursing Science department at the University of Pretoria, South Africa. Her research areas are on women’s health, violence against women, African knowledge systems, Afrocentric epistemologies, African-centred methodologies, and Multi-inter-trans-disciplinary and inter-professional (MITI). Her research methodology expertise is on qualitative (ethnography), quantitative, and mixed methods.
Project Team
Mary Ani-Amponsah, PhD, University of Ghana, Ghana. Senior Lecturer, Maternal & Child Health Department, School of Nursing and Midwifery.
Lydia Aziato, PhD, University of Ghana, Ghana. Dean, School of Nursing and Midwifery.
Lori Beaman, PhD, University of Ottawa Canada. Canada Research Chair in Religious Diversity and Social Change.
Meghann Buyco, BSN RN, MSN Student, Trinity Western University. Project Coordinator and Graduate Research Assistant.
Marethe De Waal, PhD, University of Pretoria, South Africa.
Bonny Ibhawoh, PhD, McMaster University, Canada. Senator William McMaster Chair in Global Human Rights.
Elvis Imafidon, PhD, University of London, School of Oriental and African Studies See More.
Jennifer Kromberg, PhD, University of Witwatersrand, South Africa. Professor Emeritus, Department of Human Genetics.
Mike Lang, PhD, Digital Storytelling Specialist, Mike Lang Stories, Canada.
Ronell Leech, PhD, University of Pretoria, South Africa. Associate Professor in Nursing.
Nomasonto Mazibuko, Albinism Society of South Africa, South Africa. Community Research Coordinator, Gauteng, South Africa.
Innocentia Mgijima-Konopi, LLM in International and Comparative Disability Law and Policy. Atlantic Fellow for Health Equity South Africa (AFHESA) at Tekano 2021.
Muluka Anne Miti-Drummond, United Nations Independent Expert on the enjoyment of human rights by persons with albinism.
Dianah Msipa, LL.D (Candidate), University of Pretoria. Program Manager, Disability Rights Unit. Centre for Human Rights, University of Pretoria, South Africa.
Lillian Akorfa Ohene, PhD, University of Ghana, Ghana. Senior Lecturer, Department of Community Health Nursing, School of Nursing and Midwifery.
Kristi Panchuk, MSN, Interior Health, Canada. Nurse Practitioner.
Kendra Rieger, PhD, Trinity Western University, Canada. Associate Professor in Nursing.
Perpetua Senkoro, LLM, Tanzania Human Rights Defenders Coalition. Tanzania Knowledge Translation Coordinator.
Sonya Sharma, PhD, Kingston University, United Kingdom. Associate Professor of Sociology.
Eunice Siaity-Pallangyo, PhD, The Aga Khan University, Tanzania. Academic Head, School of Nursing and Midwifery.
Emma Strobell, MSN RN, Trinity Western University. Research Associate.
Landa Terblanche, PhD, Trinity Western University, Canada. Associate Professor of Nursing, Assistant and Dean Clinical Supervision.
Wisdom Tettey, PhD, Vice-President University of Toronto, Canada. Professor of Political Science and Development Studies
Maxwell Thabethe, PhD, [In Memoriam] University of KwaZulu-Natal, South Africa. Community Research Coordinator, KwaZulu-Natal, South Africa
Mpho Tjope, Founder #ICanBe Campaign & Albinism Advocacy for Access, South Africa. Community Research Coordinator, Northern Cape, South Africa
Boateng Wiafe, MD, Technical Adviser-Operation Eyesight, Ghana
Acknowledgements: We would like to thank the following people who have engaged with our project in various capacities such as interpretation, cultural liaison, and coordination.
Jane Waithera
Ester Rwela
Mahenda Kulwa
Busisiwe Mahlaba
Clara Maliwa
Berthasia Ladislaus
Kondo Seif
Tshego Keitsemore
Annabahati Gwacha
Reverend Cannon Thomas Godda
Visual Design
Justin Chase, BBA Student, Trinity Western University
Mothering & Albinism 