Project Team

Sheryl Reimer-Kirkham, RN PhD (Project Lead)

Sheryl Reimer-Kirkham is a Professor and Dean of Nursing at Trinity Western University, Canada.  Her research is in the area of plurality and equity in healthcare, focusing on the intersections of religion, spirituality, race, class, and gender.  She leads an international, interdisciplinary program of research on albinism, spiritual/cultural beliefs, and human rights.  See more

Barbara Astle, RN PhD (Project Co-Lead)

Barbara Astle is a Professor and the Director of Graduate Studies at the School of Nursing at Trinity Western University, Canada. She has focused her academic career in the field of global health and health equity. Using critical perspectives and qualitative/participatory action research methods, she has published extensively on nursing and global health education, global health education partnerships, competency-based curriculum in global health, and principles for global health research. She is the Co-Director of the TWU Centre of Equity and Global Engagement and the Co-Chair for the Consortium of Universities for Global Health (CUGH) Global Health Competency Sub-committee. See more

Ikponwosa Ero, JD (Project Co-Lead)

Ikponwosa Ero, herself a person with albinism, is a Human Rights lawyer. She was appointed as the first United Nations (UN) Independent Expert on the enjoyment of human rights by persons with albinism from 2015 to 2021. She is currently the Director, Human Rights Advocacy for Under the Same Sun (UTSS) and Technical Adviser, Africa Albinism Alliance. She has worked extensively on issues about the human rights of persons with albinism, including serving as the international advocacy and legal officer for UTSS in Canada and Tanzania. She was instrumental in the writing and adoption of nine international human rights resolutions on albinism, including at the Human Rights Council, at the General Assembly, and at the African Commission for Human and Peoples’ Rights.

Project Team

Lori Beaman, PhD, University of Ottawa Canada. Canada Research Chair in Religious Diversity and Social Change

Meghann Buyco BSN RN, MSN Student, Trinity Western University. Project Coordinator and Graduate Research Assistant

Marethe De Waal, PhD, University of Pretoria, South Africa

Bonny Ibhawoh, PhD, McMaster University, Canada. Senator William McMaster Chair in Global Human Rights.

Elvis Imafidon, PhD, University of London, School of Oriental and African Studies See More

Jennifer Kromberg, PhD, University of Witwatersrand , South Africa. Professor Emeritus, Department of Human Genetics. See More

Nomasonto Mazibuko, Albinism Society of South Africa, South Africa. Community Research Coordinator, Gauteng, South Africa.

Innocentia Mgijima-Konopi, LLM in International and Comparative Disability Law and Policy. Atlantic Fellow for Health Equity South Africa (AFHESA) at Tekano 2021

Dianah Msipa, LL.D (Candidate), University of Pretoria. Program Manager, Disability Rights Unit. Centre for Human Rights, University of Pretoria, South Africa

Kristi Panchuk, MSN, Interior Health, Canada. Nurse Practitioner.

Shirley Ramadimetja Mogale, PhD, University of Pretoria, South Africa, Head of Nursing Science Department

Perpetua Senkoro, LLM, Tanzania Human Rights Defenders Coalition. Tanzania Knowledge Translation Coordinator

Sonya Sharma, PhD, Kingston University, United Kingdom. Associate Professor of Sociology

Emma Strobell, MSN RN, Trinity Western University. Research Associate

Wisdom Tettey, PhD, Vice-President University of Toronto, Canada. Professor of Political Science and Development Studies

Maxwell Thabethe, PhD, University of KwaZulu-Natal, South Africa. Community Research Coordinator, KwaZulu-Natal, South Africa

Mpho Tjope, Founder #ICanBe Campaign & Albinism Advocacy for Access, South Africa. Community Research Coordinator, Northern Cape, South Africa

Boateng Wiafe, MD, Technical Adviser-Operation Eyesight, Ghana

Acknowledgements: We would like to thank the following people who have engaged with our project in various capacities such as interpretation, cultural liaison, and coordination. 

Jane Waithera

Ester Rwela

Mahenda Kulwa

Clara Maliwa

Berthasia Ladislaus

Kondo Seif

Tshego Keitsemore

Annabahati Gwacha

Visual Design

Justin Chase, BBA Student, Trinity Western University