Presentations and Publications

PUBLICATIONS

Reimer-Kirkham, S., Astle, B., Ero, I., Imafidon, E., & Strobell, E. (in press). The disproportionate impact of health related stigma and associated worldviews on the security and wellbeing of mothers affected by albinism. Journal of Foundation of Science. Accepted September 1, 2020.

Reimer-Kirkham, S., Astle, B., Ero, I., Panchuk, K., & Dixon, D. (2019). Albinism, spiritual and cultural practices, and implications for health, healthcare, and human rights: a scoping review. Disability & Society, 34(5), 747-774.

Report of the Independent Expert on the enjoyment of human rights by persons with albinism on the round table on human rights and albinism: Seeking consensus and priorities on advocacy and research. A/HRC/40/62/Add.2 URL: https://undocs.org/en/A/HRC/40/62/Add.2 [prepared by Reimer-Kirkham, S, Astle, B., Panchuk, K., & Strobell, E]

PRESENTATIONS

Buyco, M., Strobell, E., Reimer-Kirkham, S., Astle, B. (August 28, 2020- Virtual). Recognizing human rights in the everyday: Multidisciplinary research on albinism and human rights in Tanzania, South Africa, and Ghana. Research and Creativity Symposium, Trinity Western University. Langley, BC.

Strobell, E., Reimer-Kirkham, S., Astle, B. (August 12, 2020- Virtual). Mothers of children with albinism in Tanzania share their experience: Survival, resilience, and voices for change. University of Witwatersrand, Division of Human Genetics Seminar Series. Johannesburg, South Africa.

Astle, B., Reimer-Kirkham, S., Ikponwosa, E., & Strobell, E. (February 1, 2020 – Invited). Humanizing the experiences of persons with albinism: Global perspectives on human rights and access to health and social services. Annual Rocky Mountain Eye Conference (Eye Physicians and Surgeons Association of Alberta) International Joint Commission for Allied Health Professionals in Ophthalmology (IJCAHPO) Satellite Meeting. Banff, Canada.

Strobell, E., Reimer-Kirkham, S., Astle, B. (October 17, 2019). Engaging the experiences of mothers impacted by albinism in Tanzania: An ethnographic study towards health equity. In Canadian Society for International Health, Canadian Conference on Global Health, Governance for Global Health: Power, Politics and Justice. Presentation given at the 25th Annual Canadian Conference on Global Health, Ottawa, ON. 

Reimer-Kirkham, S, Astle, B., Panchuk, K., & Strobell, E. (May 9, 2019).  Nothing about us without us.  Lightning Talk, Inspiring Person-Centredness:  A Call to Action Conference, Vancouver, BC.

Reimer-Kirkham, S., Astle, B., Ero, I., Panchuk, K, Strobell, E., & Dixon, D. (January 10, 2019).  Witchcraft, albinism, and human rights: Evidence from a mixed methods study. Paper presented at Witchcraft and Human Rights: Past, Present and Future Conference, Lancaster, UK.

Reimer-Kirkham, S. (November 16, 2018). Albinism and human rights.  Pecha Kucha presentation.  Royal Society of Canada Celebration of Excellence Annual Meeting.  Halifax, Nova Scotia.

Astle, B., Reimer-Kirkham, S., Ero, I., Panchuk, K., Strobell, E. (November 20, 2018).  The influence of spiritual and cultural practices on healthcare for persons with albinism: Insights from a scoping review.  Paper presented at 24th Annual Canadian Conference on Global Health, Toronto, ON.

Reimer-Kirkham, S., Astle, B., Ero, I., Dixon, D., Janzen, K., & Panchuk, K. (July 13, 2017). A scoping review on the health implications of spiritual and cultural practices for persons with albinism: A global health perspective. Paper presented at the XI Eta and Region 1 – 2017 International Nursing Research and Leadership Conference:  Vancouver, B.C.