Presentations and Publications

PUBLICATIONS

Buyco, M., Reimer-Kirkham, S., Astle, B., de Waal, M., Kromberg, J., Mazibuko, N., Mgijima-Konopi, I, Mogale, S., Msipa, D., Strobell, E., Thabethe, M., Tjope, M. (in press). Access to healthcare by mothers impacted by albinism in South Africa. Southern Africa Albinism Journal. (accepted May 28, 2022).  

Ero, I., Reimer-Kirkham, S., Astle, B., Strobell, E., & Buyco, M. (in press). Women human rights defenders: Case of activism of mothers of children with albinism in Tanzania. In Handbook of Disability: Critical Thought, Human Rights and Social Change in a Globalizing World. Springer.

Ibhawoh, B., Reimer-Kirkham, S., Ero, I., Mgijima-Konopi, I., Beaman, L., Senkoro, P., Astle, B., Strobell, E., & Imafidon, E. (2022). Shifting wrongs to rights: Lessons in human rights from the situation of mothers impacted by albinism in Africa. Journal of Human Rights Practice. https://doi.org/10.1093/jhuman/huac038

Reimer-Kirkham, S., Ero, I., Astle, B., Buyco, M. & Strobell, E. (2022). UN resolution on the elimination of harmful practices and the protection of human rights of mothers impacted by albinism. Journal of Global Health, 12(03029). https://jogh.org/2022/jogh-12-03029

Reimer-Kirkham, S., Ero, I., Mgijima-Konopi, I., Strobell, E., & Astle, B. (2021). Mothering and albinism: Recommendations for disability rights in Africa. African Disability Rights Yearbook. University of Pretoria. https://www.adry.up.ac.za/section-c-2021/reimer-kirkham-s-ero-i-mgijima-konopi-i-strobell-e-astle-b

Reimer-Kirkham, S., Astle, B., Ero, I., Imafidon, E., & Strobell, E. (2020). The disproportionate impact of health-related stigma and associated worldviews on the security and wellbeing of mothers affected by albinism. Journal of Foundation of Science. https://doi.org/10.1007/s10699-020-09701-0

Strobell, E. (2020). Exploring the experience of mothers who have children with albinism in Tanzania: A critical ethnography [Master’s thesis, Trinity Western University]. https://twu.arcabc.ca/islandora/object/twu%3A623

Reimer-Kirkham, S., Astle, B., Ero, I., Panchuk, K., & Dixon, D. (2019). Albinism, spiritual and cultural practices, and implications for health, healthcare, and human rights: a scoping review. Disability & Society, 34(5), 747-774. https://doi.org/10.1080/09687599.2019.1566051

Report of the Independent Expert on the enjoyment of human rights by persons with albinism on the round table on human rights and albinism: Seeking consensus and priorities on advocacy and research. A/HRC/40/62/Add.2 URL: https://undocs.org/en/A/HRC/40/62/Add.2 [prepared by Reimer-Kirkham, S, Astle, B., Panchuk, K., & Strobell, E]

PRESENTATIONS

Buyco, M., Senkoro, P., Strobell, E., Reimer-Kirkham, S. & Astle, B. (August 26, 2022 – virtual). Mothering and albinism: Faith leaders as human rights defenders. Create Conference. Trinity Western University, Canada.

Astle, B. & Ero, E. (May 20, 2022 – Invited Keynote). Contributing to a global human rights movement for persons with albinism: A research-policy-advocacy network. International Joint Commission for Allied Health Professionals in Ophthalmology (IJCAHPO). Vancouver, Canada.

Astle, B., Mgijima-Konopi, I., Buyco, M., De Waal, M., Ero, I., Kromberg, J., Mazibuko, N., Mogale, S., Msipa, D., Reimer-Kirkham, S., Strobell, E., Thabethe, M., Tjope, M. (November 24 – 26th, 2021 [Virtual]). Applying a decolonizing lens to a South Africa-Canada intersectoral partnership on mothering and albinism during the global pandemic [Poster]. 27th Canadian Conference on Global Health/ Conférence Canadienne sur la santé mondiale. Ottawa & Virtual, Canada.

Ero, I., Tettey, W., Strobell, E., Reimer-Kirkham, S., Astle, B. & Buyco, M. (November 4, 2021- Invited). Graduate Seminar: Mothering, Albinism, & Human Rights [Development, Policy, & Power]. University of Toronto at Scarborough, Canada.

Buyco, M., Strobell, E., Reimer-Kirkham, S., Astle, B. (August 28, 2020- Virtual). Recognizing human rights in the everyday: Multidisciplinary research on albinism and human rights in Tanzania, South Africa, and Ghana. Research and Creativity Symposium, Trinity Western University. Langley, BC.

Strobell, E., Reimer-Kirkham, S., Astle, B. (August 12, 2020- Virtual). Mothers of children with albinism in Tanzania share their experience: Survival, resilience, and voices for change. University of Witwatersrand, Division of Human Genetics Seminar Series. Johannesburg, South Africa.

Astle, B., Reimer-Kirkham, S., Ero, I., & Strobell, E. (February 1, 2020 – Invited). Humanizing the experiences of persons with albinism: Global perspectives on human rights and access to health and social services. Annual Rocky Mountain Eye Conference (Eye Physicians and Surgeons Association of Alberta) International Joint Commission for Allied Health Professionals in Ophthalmology (IJCAHPO) Satellite Meeting. Banff, Canada.

Strobell, E., Reimer-Kirkham, S., Astle, B. (October 17, 2019). Engaging the experiences of mothers impacted by albinism in Tanzania: An ethnographic study towards health equity. In Canadian Society for International Health, Canadian Conference on Global Health, Governance for Global Health: Power, Politics and Justice. Presentation given at the 25th Annual Canadian Conference on Global Health, Ottawa, ON. 

Reimer-Kirkham, S, Astle, B., Panchuk, K., & Strobell, E. (May 9, 2019).  Nothing about us without us.  Lightning Talk, Inspiring Person-Centredness:  A Call to Action Conference, Vancouver, BC.

Reimer-Kirkham, S., Astle, B., Ero, I., Panchuk, K, Strobell, E., & Dixon, D. (January 10, 2019).  Witchcraft, albinism, and human rights: Evidence from a mixed methods study. Paper presented at Witchcraft and Human Rights: Past, Present and Future Conference, Lancaster, UK.

Reimer-Kirkham, S. (November 16, 2018). Albinism and human rights.  Pecha Kucha presentation.  Royal Society of Canada Celebration of Excellence Annual Meeting.  Halifax, Nova Scotia.

Astle, B., Reimer-Kirkham, S., Ero, I., Panchuk, K., Strobell, E. (November 20, 2018).  The influence of spiritual and cultural practices on healthcare for persons with albinism: Insights from a scoping review.  Paper presented at 24th Annual Canadian Conference on Global Health, Toronto, ON.

Reimer-Kirkham, S., Astle, B., Ero, I., Dixon, D., Janzen, K., & Panchuk, K. (July 13, 2017). A scoping review on the health implications of spiritual and cultural practices for persons with albinism: A global health perspective. Paper presented at the XI Eta and Region 1 – 2017 International Nursing Research and Leadership Conference:  Vancouver, B.C.

Presentation by Sheryl Reimer-Kirkham