Mapping patterns of resilience at the juncture of gender, colourism, religion, and human rights
Congratulations to Peter Ash, founder and CEO of Under the Same Sun (UTSS), on the release of his auto-biography that weaves together firsthand accounts of Tanzanian children with albinism with his own story. Members of the Mothering and Albinism network (Photo: Left to Right Kendra Rieger, IK Ero, Barb Astle, Peter Ash, Sheryl Reimer-Kirkham, Ingrid… Continue reading Book release: Out of the Ashes by Peter Ash
By collectively developing creative resources, we are bringing alive the birth stories of our team members/participants, and meaningfully integrating learning from our intersectoral collaborations and research findings.
Did you know? Little research has been conducted in Canada on the psychosocial experiences of mothers impacted by albinism, the experiences of their families, their journey in accessing healthcare services, and their enjoyment of human rights. Even the incidence of albinism in Canada has a question mark, estimated to be 1 in 20,000. When this… Continue reading Albinism Birthing Stories in Canada
Involving students in an internship within a research project is valuable for both the learners and the coalition of research and communities. Each year, the Mothering & Albinism network welcomes student interns with varied lived experiences, disciplinary perspectives, and cultural frameworks to enrich the project’s research and advocacy efforts by broadening how discrimination, stigma, and… Continue reading Birthing Stories Project: Student Interns 2025
In the past months, Mothering & Albinism team members have presented our work at two international conferences. African Studies Association, Chicago, IL, December 2024 Our team took advantage of the opportunity to present the work of our Mothering and Albinism Network at the African Studies Association Annual Meeting in Chicago in December 2024. This venue… Continue reading International Presentations by Mothering & Albinism Team in Chicago USA and Lancaster UK
We are proud to share a recently published academic article written by our brilliant first cohort (2023-2024) of undergraduate student interns as part of the Mothering & Albinism project. Their work highlights the importance of including students in research—not only as learners, but also as contributors to knowledge and advocacy. Collaboration, engagement, and mentorship are… Continue reading A Video Analysis on the Experiences of Mothers Affected by Albinism
In health research, interviews are used as tools for gathering data to answer questions; however, sometimes, interviews can really become something more, such as spaces for raw honesty, emotional truth, and collective awakening. This blog post reflects on such an experience whereby a focus group discussion was conducted with student nurses for data collection about… Continue reading Listening, Learning, and Leading Change—A Reflection on Interviewing Student Nurses About Albinism in Maternity Care
On June 12th, 2025, Amnesty International launched the Southern Africa Journal on Albinism and Socio-Economic Rights in commemoration of International Albinism Awareness Day (13th of June). This year's global theme: “Demanding our rights: Protect our skin, Preserve our lives.” This journal is the first of its kind, focusing on albinism and Economic, Social, and Cultural… Continue reading Launch of the Southern Africa Journal on Albinism and Socio-Economic Rights June 12th, 2025
With our commitment to support the mandate of the UN Independent Expert on the Enjoyment of Human Rights by Persons with Albinism, Muluka-Anne Miti-Drummond, our network engages in research, advocacy, and policy work. This month, we wrote a letter of support to the 25th World Health Expert Committee on Selection and Use of Essential Medicines.… Continue reading Mothering and Albinism Network’s submission to the World Health Organization to support an application to add sunscreen to the WHO List of Essential Medicines
The protection of persons with albinism has gained increased attention on the international stage over the last decade, driven mainly by the efforts of the United Nations (hereafter, UN) and its Independent Expert on the enjoyment of human rights by persons with albinism. Ikponwosa Ero served as an Independent Expert from 2015 to 2021,[1] followed… Continue reading International Standards Addressing Albinism: A Focus on UN Resolutions
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