My name is Victoria Fowler and I am an undergraduate research assistant in my third year of nursing at Trinity Western University. I have had the privilege of working alongside the Mothering and Albinism research team to gather information and raise awareness about this very important topic. My role in this project has been to… Continue reading Summary of UN Reports on Albinism & Human Rights
In many parts of the world, mothers affected by albinism—whether as mothers of children with albinism or themselves with albinism—are disproportionately impacted by a constellation of health-related stigma, associated worldviews and human rights violations. Read our Open Access paper (available at link below) about our critical ethnographic study in Tanzania, where we engaged with the… Continue reading Mothering, Albinism and Human Rights: The Disproportionate Impact of Health-Related Stigma in Tanzania
A panel of mothers impacted by albinism. Participants from across the African continent. Researchers presenting on our mothering and albinism project in South Africa (Dr. Sheryl Reimer-Kirkham), and on the psychosocial impact of albinism (Dr. Jennifer Kromberg). The UN Independent expert on albinism’s report on women and children with albinism (Ms. Ikponwosa Ero). Expert facilitation… Continue reading Albinism Awareness Month in South Africa: An online webinar on mothers impacted by albinism
Nomosonto Mazibuko, a teacher, and Jennifer Kromberg, an academic, in conversation about their relationship while working in the Albinism field in South Africa. Both are collaborators on the Mothering and Albinism project. A long time ago, in about 1972, in Johannesburg, South Africa, Nomosonto (NM) and Jennifer (JK) met. NM was initially a teacher with… Continue reading In Conversation with Two of South Africa’s Leaders on Albinism: Nomasonto Mazibuko & Dr. Jennifer Kromberg
Emma Strobell defended her Master’s thesis, “Exploring the Experience of Mothers who have Children with Albinism in Tanzania: A Critical Ethnography” (see abstract below) on March 16, 2020 and offers her reflections here: Dr. Barbara Astle, Emma Strobell, Dr. Sheryl Reimer-Kirkham (left to right), & Dr. Sonya Sharma (center) As I defended my thesis research,… Continue reading Researcher Vantage Point: Reflections from My Master’s Defense
Tomorrow, Saturday, June 13, 2020, marks the 5th annual celebration of International Albinism Awareness Day (IAAD). This years' theme is 'Made to Shine', "chosen to highlight the qualities of persons with albinism around the word" (facebook.com/albinismday, February 24, 2020). On December 18, 2014, the United Nations formally declared June 13 IAAD (UN Resolution 69/170), acknowledging… Continue reading International Albinism Awareness Day, 2020: Made to Shine
Perpetua Senkoro, Advocate and Human Rights Officer with Under the Same Sun in Dar es Salaam, Tanzania, and Site Collaborator on our research project, is studying at McGill University. She writes: Montreal has so far been quite pleasant. Considering I come from Dar-es-salaam, a coastal city in Tanzania, where it’s pretty much summer all year… Continue reading Reflections on being a law student in Montreal as a woman with albinism from Dar es Salaam
On February 11, 2020, Ikponwosa Ero, United Nations Expert on the Enjoyment of Human Rights by Persons with Albinism is the featured Guest Speaker, alongside a panel of researchers in albinism and gender studies, at the Gender, Albinism & Human Rights Café hosted by Trinity Western University, School of Nursing, Gender Studies Institute, Centre for… Continue reading Gender, Albinism & Human Rights
People with albinism are different, yet they are not (Meghann Buyco).
Vancouver. Calgary. Amsterdam. Kilimanjaro. Dar es Salaam. Stiff after 23 hours of travel time, I arrived to warm welcomes “Karibu Sana Tanzania” (Swahili for “You are very welcome to Tanzania”) and tropical heat. Following several months of working through research clearance in country as well as in Canada, obtaining the correct travel visa, and coordinating… Continue reading Karibu Tanzania!