Mothering & Albinism

Three non-governmental organizations, the Centre for Human Rights (University of Pretoria), the Institute for Human Rights and Development in Africa (IHRDA) and the Legal and Human Rights Centre (LHRC), filed a case (Application No. 019/2018) on January 26th, 2018 to the African Court on Human and Peoples’ Rights against the Republic of Tanzania in regards… Continue reading The African Court on Human and Peoples’ Rights rules Tanzania Violated the Rights of Persons with Albinism

Over the last year, we as student interns from Canada and Ghana have taken part in the international Mothering and Albinism research project. Our internship journey began by familiarizing ourselves with the project and the composition of the research-policy-advocacy network. We partook in the internship with the aim of learning about the research and about… Continue reading Student Interns (2023 Cohort) From Ghana and Canada Reflect on Their Exceptional Learning 

The Mothering and Albinism research project is a partner of the Africa Albinism Network (AAN), aiming to protect and promote the rights of persons with albinism and their families. The Africa Albinism Network (AAN) hosted the Women’s Learning Forum in Nairobi, Kenya, from May 28 to 30, 2024. This event brought together 28 women impacted… Continue reading Empowering Female Leaders with Albinism: Reflections from the 2024 AAN Women’s Learning Forum

The photo was taken on August 29, 2024, at The Aga Khan University after a fruitful discussion between the student interns of the Mothering & Albinism 2024 cohort (Ackremson Majaliwa and Augustine Gerald) with mentor Dr. Eunice Siaity-Pallangyo from Aga Khan University, Tanzania, and albinism and disability advocate and team member, Ms. Perpetua Senkoro from… Continue reading Tanzanian Student Interns (2024) in Meaningful Discussion on Albinism

We are excited to introduce to you our second cohort of interns - eight students who are joining the Mothering & Albinism network for 2024-2025. This year, we have a diverse group of students representing the four countries in our Birthing Stories project:  Ghana, South Africa, Tanzania and Canada. Each intern is assigned to one… Continue reading Birthing Stories Project: Student Interns 2024

The University of Pretoria publishes a digital research magazine called Re.Search Magazine featuring future-focused, multi-, inter-, and transdisciplinary research that has global impact. Each issue, they highlight the multiplicity and impactful research of the University of Pretoria community and their collaborators. They promote innovation and multifaceted approaches to their research to explore and address global… Continue reading Mothering & Albinism Featured in the Re.Search Magazine

We are a group of researchers and advocates from Canada, South Africa, Tanzania, Ghana, Nigeria, Zambia, and England. We are supporting the United Nations Independent Expert mandate on the enjoyment of human rights by persons with albinism through research. We have conducted research on albinism and human rights since 2015. We are currently conducting a… Continue reading Birthing Stories of Families Impacted by Albinism in Canada: Inviting Participants

The Mothering and Albinism project has six student interns for 2023-2024, three from Ghana and three from Canada (to read about them, click here). While they have been busy contributing to our research on a video analysis on mothers and carers’ experiences on the birth of a baby with albinism (forthcoming paper), they have also… Continue reading “Meet the Author/Advocate” Seminars with the Student Interns

In celebrating International Albinism Awareness Day, we highlight the successful forum hosted by Africa Albinism Network, empowering female leaders with albinism in Africa. Photo credit: Africa Albinism Netwrok Within the albinism movement and civil society at large, men have traditionally occupied leadership positions, leaving little space for the development of women’s voices and leadership. A… Continue reading Empowering Female Leaders with Albinism