Mapping patterns of resilience at the juncture of gender, colourism, religion, and human rights
We are a group of researchers and advocates from Canada, South Africa, Tanzania, Ghana, Nigeria, Zambia, and England. We are supporting the United Nations Independent Expert mandate on the enjoyment of human rights by persons with albinism through research. We have conducted research on albinism and human rights since 2015. We are currently conducting a… Continue reading Birthing Stories of Families Impacted by Albinism in Canada: Inviting Participants
https://www.youtube.com/watch?v=FiO380Dm97c The Mothering and Albinism research project is a partner of the Africa Albinism Network (AAN), aiming to protect and promote the rights of persons with albinism and their families. Recently, the AAN published a video featuring a decade of collective progress of the albinism movement, highlighting key milestones in Africa and globally. The video starts… Continue reading Africa Albinism Network Highlights the 10 Years of #IAAD (International Albinism Awareness Day): A Decade of Collective Progress
The Mothering and Albinism project has six student interns for 2023-2024, three from Ghana and three from Canada (to read about them, click here). While they have been busy contributing to our research on a video analysis on mothers and carers’ experiences on the birth of a baby with albinism (forthcoming paper), they have also… Continue reading “Meet the Author/Advocate” Seminars with the Student Interns
In celebrating International Albinism Awareness Day, we highlight the successful forum hosted by Africa Albinism Network, empowering female leaders with albinism in Africa. Photo credit: Africa Albinism Netwrok Within the albinism movement and civil society at large, men have traditionally occupied leadership positions, leaving little space for the development of women’s voices and leadership. A… Continue reading Empowering Female Leaders with Albinism
Puleng Molebatsi, a person with albinism, is a radio and television content producer, actor, and activist in South Africa. She is well known as the radio host to “The Out and About and Tech Africa” on Channel Africa. This year, 2023, in partnership with the Mothering and Albinism research project, she directed the film titled… Continue reading Film Project: A Conversation with Puleng Molebatsi in Filming “Mothering and Albinism in South Africa”
The Mothering and Albinism Research-Advocacy-Policy Network facilitated a Public Forum in Pretoria on October 2nd, 2023 to share the findings of our project on the resilience of South African mothers affected by albinism, whether they have albinism themselves or have children with albinism. The Forum was in partnership between the University of Pretoria's Health Science department… Continue reading Mothering and Albinism: Public Forum in Pretoria, South Africa
As a network of scholars and advocates from multiple disciplinary fields and various sectors, we are bringing our knowledges and skills together to address a complex problematic, that of protecting and promoting the human rights of mothers impacted by albinism. This challenge cannot be solved by any one disciplinary stance, methodological approach or practical skillset.… Continue reading The strength of our research-advocacy-policy network in action: Reflections on our Engagement Workshop in Pretoria, October 2-4, 2023
An exciting aspect of our Birthing Stories project is the involvement of undergraduate and graduate students as interns. In 2023, students from Ghana and Canada will work with researchers and advocates to learn firsthand about how research can contribute to the protection of human rights for mothers impacted by albinism. The interns will engage in… Continue reading Birthing Stories Project: Student Interns 2023
Research on siblings and albinism, the focus of my (Meghann Buyco) recent thesis, is long overdue. There has been increased global attention and research on albinism but very little remains known about the experiences of albinism between siblings. Thus, this past year, I was privileged to hear persons with albinism and their siblings share their stories… Continue reading Conducting Research on Albinism and Siblings in Africa: Reflecting Deeply on my Positionality
The International Council of Nurses (ICN, n.d.), a federation of more than 130 national nurses associations, hosted this year’s Congress in Montreal, Canada with an attendance of about 6,000 nurses from all over the world (ICN, 2023). Our Mothering and Albinism team presented our important research work on albinism and human rights through a presentation… Continue reading Presenting on Albinism at the International Council of Nurses 2023
Mothering & Albinism 