Nomosonto Mazibuko, a teacher, and Jennifer Kromberg, an academic, in conversation about their relationship while working in the Albinism field in South Africa. Both are collaborators on the Mothering and Albinism project. A long time ago, in about 1972, in Johannesburg, South Africa, Nomosonto (NM) and Jennifer (JK) met. NM was initially a teacher with… Continue reading In Conversation with Two of South Africa’s Leaders on Albinism: Nomasonto Mazibuko & Dr. Jennifer Kromberg
Researcher Vantage Point: Reflections from My Master’s Defense
Emma Strobell defended her Master’s thesis, “Exploring the Experience of Mothers who have Children with Albinism in Tanzania: A Critical Ethnography” (see abstract below) on March 16, 2020 and offers her reflections here: Dr. Barbara Astle, Emma Strobell, Dr. Sheryl Reimer-Kirkham (left to right), & Dr. Sonya Sharma (center) As I defended my thesis research,… Continue reading Researcher Vantage Point: Reflections from My Master’s Defense
International Albinism Awareness Day, 2020: Made to Shine
Tomorrow, Saturday, June 13, 2020, marks the 5th annual celebration of International Albinism Awareness Day (IAAD). This years' theme is 'Made to Shine', "chosen to highlight the qualities of persons with albinism around the word" (facebook.com/albinismday, February 24, 2020). On December 18, 2014, the United Nations formally declared June 13 IAAD (UN Resolution 69/170), acknowledging… Continue reading International Albinism Awareness Day, 2020: Made to Shine
Reflections on being a law student in Montreal as a woman with albinism from Dar es Salaam
Perpetua Senkoro, Advocate and Human Rights Officer with Under the Same Sun in Dar es Salaam, Tanzania, and Site Collaborator on our research project, is studying at McGill University. She writes: Montreal has so far been quite pleasant. Considering I come from Dar-es-salaam, a coastal city in Tanzania, where it’s pretty much summer all year… Continue reading Reflections on being a law student in Montreal as a woman with albinism from Dar es Salaam
Gender, Albinism & Human Rights
On February 11, 2020, Ikponwosa Ero, United Nations Expert on the Enjoyment of Human Rights by Persons with Albinism is the featured Guest Speaker, alongside a panel of researchers in albinism and gender studies, at the Gender, Albinism & Human Rights Café hosted by Trinity Western University, School of Nursing, Gender Studies Institute, Centre for… Continue reading Gender, Albinism & Human Rights
my journey as a research assistant and person with albinism….
People with albinism are different, yet they are not (Meghann Buyco).
Vancouver. Calgary. Amsterdam. Kilimanjaro. Dar es Salaam. Stiff after 23 hours of travel time, I arrived to warm welcomes “Karibu Sana Tanzania” (Swahili for “You are very welcome to Tanzania”) and tropical heat. Following several months of working through research clearance in country as well as in Canada, obtaining the correct travel visa, and coordinating… Continue reading Karibu Tanzania!
“Still Standing Strong”. International Albinism Awareness Day, June 13, 2019, New York
The theme for Albinism Awareness Day 2019 was “Still Standing Strong”. This theme is a call to recognize, celebrate and stand in solidarity with persons with albinism around the world, and to support their cause, from their accomplishments and positive practices to the promotion and protection of their human rights. At the United Nations Headquarters… Continue reading “Still Standing Strong”. International Albinism Awareness Day, June 13, 2019, New York
Our entry point
Ikponwosa Ero, United Nations Independent Expert on the Enjoyment of Human Rights by Persons with Albinism, approached us (Dr. Barb Astle and myself, Dr. Sheryl Reimer-Kirkham) a few years ago about supporting her mandate as researchers. Her invitation was compelling. Though neither of us had conducted research on albinism, we draw on our respective areas… Continue reading Our entry point