In many parts of the world, mothers affected by albinism—whether as mothers of children with albinism or themselves with albinism—are disproportionately impacted by a constellation of health-related stigma, associated worldviews and human rights violations. Read our Open Access paper (available at link below) about our critical ethnographic study in Tanzania, where we engaged with the… Continue reading Mothering, Albinism and Human Rights: The Disproportionate Impact of Health-Related Stigma in Tanzania
Perpetua Senkoro, Advocate and Human Rights Officer with Under the Same Sun in Dar es Salaam, Tanzania, and Site Collaborator on our research project, is studying at McGill University. She writes: Montreal has so far been quite pleasant. Considering I come from Dar-es-salaam, a coastal city in Tanzania, where it’s pretty much summer all year… Continue reading Reflections on being a law student in Montreal as a woman with albinism from Dar es Salaam
On February 11, 2020, Ikponwosa Ero, United Nations Expert on the Enjoyment of Human Rights by Persons with Albinism is the featured Guest Speaker, alongside a panel of researchers in albinism and gender studies, at the Gender, Albinism & Human Rights Café hosted by Trinity Western University, School of Nursing, Gender Studies Institute, Centre for… Continue reading Gender, Albinism & Human Rights
People with albinism are different, yet they are not (Meghann Buyco).
Vancouver. Calgary. Amsterdam. Kilimanjaro. Dar es Salaam. Stiff after 23 hours of travel time, I arrived to warm welcomes “Karibu Sana Tanzania” (Swahili for “You are very welcome to Tanzania”) and tropical heat. Following several months of working through research clearance in country as well as in Canada, obtaining the correct travel visa, and coordinating… Continue reading Karibu Tanzania!
The theme for Albinism Awareness Day 2019 was “Still Standing Strong”. This theme is a call to recognize, celebrate and stand in solidarity with persons with albinism around the world, and to support their cause, from their accomplishments and positive practices to the promotion and protection of their human rights. At the United Nations Headquarters… Continue reading “Still Standing Strong”. International Albinism Awareness Day, June 13, 2019, New York
Ikponwosa Ero, United Nations Independent Expert on the Enjoyment of Human Rights by Persons with Albinism, approached us (Dr. Barb Astle and myself, Dr. Sheryl Reimer-Kirkham) a few years ago about supporting her mandate as researchers. Her invitation was compelling. Though neither of us had conducted research on albinism, we draw on our respective areas… Continue reading Our entry point