“Still Standing Strong”. International Albinism Awareness Day, June 13, 2019, New York

The theme for Albinism Awareness Day 2019 was “Still Standing Strong”.  This theme is a call to recognize, celebrate and stand in solidarity with persons with albinism around the world, and to support their cause, from their accomplishments and positive practices to the promotion and protection of their human rights.

At the United Nations Headquarters New York on International Albinism Awareness Day.
L to R: Dr. Sheryl Reimer-Kirkham, IK Ero UN (Independent Expert on Albinism), Dr. Barb Astle

Events were held around the world on June 13th, including a Side Event on Persons with Albinism at the UN Headquarters, New York, hosted by IK Ero, UN Independent Expert on the Enjoyment of Human Rights by Persons with Albinism.  This side event was held during the 12th session of the Conference of States Parties to the Convention on the Rights of Persons with Disabilities, and was composed of a diverse group of panelists who have played an important role in bring persons with albinism “out of the shadows” and into the fore of mainstream discussions and policy changes.  Dr. Sheryl Reimer-Kirkham moderated the event.  Attended by hundreds of global participants, the event signaled how broad partnerships accelerate the enjoyment of human rights by persons with albinism.

Photo Credit: Barb Astle

After the Side Event, participants of the “Still Standing Strong” event walked from the UN to Times Square where a series of billboards displayed Albinism Day messaging. 

For Barb and Sheryl, to be part of this much larger movement was immensely inspiring.  As researchers, we work alongside many stakeholders to bring attention, evidence, and allyship.  It is easy for us as researchers to get lost in the practicalities of fieldwork, the minutiae of data, or the critical analysis required by writing.  This type of event brings wonderful perspective and motivation for engaged partnerships.

See Concept note and event information here

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