Mapping patterns of resilience at the juncture of gender, colourism, religion, and human rights
Over the past year, we have been hearing from mothers, fathers, and community members (healthcare providers and health educators, advocates, and policymakers) through interviews and focus groups conducted as part of our research on perinatal experiences of mothers giving birth to a baby with albinism. We have now moved into Phase III (Create) of our… Continue reading “Reamogeleng” (Accept Us): A Digital Story Reflection in Honour of International Albinism Awareness Day June 13, 2026
Congratulations to Peter Ash, founder and CEO of Under the Same Sun (UTSS), on the release of his auto-biography that weaves together firsthand accounts of Tanzanian children with albinism with his own story. Members of the Mothering and Albinism network (Photo: Left to Right Kendra Rieger, IK Ero, Barb Astle, Peter Ash, Sheryl Reimer-Kirkham, Ingrid… Continue reading Book release: Out of the Ashes by Peter Ash
Involving students in an internship within a research project is valuable for both the learners and the coalition of research and communities. Each year, the Mothering & Albinism network welcomes student interns with varied lived experiences, disciplinary perspectives, and cultural frameworks to enrich the project’s research and advocacy efforts by broadening how discrimination, stigma, and… Continue reading Birthing Stories Project: Student Interns 2025
The protection of persons with albinism has gained increased attention on the international stage over the last decade, driven mainly by the efforts of the United Nations (hereafter, UN) and its Independent Expert on the enjoyment of human rights by persons with albinism. Ikponwosa Ero served as an Independent Expert from 2015 to 2021,[1] followed… Continue reading International Standards Addressing Albinism: A Focus on UN Resolutions
https://www.youtube.com/watch?v=FiO380Dm97c The Mothering and Albinism research project is a partner of the Africa Albinism Network (AAN), aiming to protect and promote the rights of persons with albinism and their families. Recently, the AAN published a video featuring a decade of collective progress of the albinism movement, highlighting key milestones in Africa and globally. The video starts… Continue reading Africa Albinism Network Highlights the 10 Years of #IAAD (International Albinism Awareness Day): A Decade of Collective Progress
Emma Strobell defended her Master’s thesis, “Exploring the Experience of Mothers who have Children with Albinism in Tanzania: A Critical Ethnography” (see abstract below) on March 16, 2020 and offers her reflections here: Dr. Barbara Astle, Emma Strobell, Dr. Sheryl Reimer-Kirkham (left to right), & Dr. Sonya Sharma (center) As I defended my thesis research,… Continue reading Researcher Vantage Point: Reflections from My Master’s Defense
Mothering & Albinism 