Summary of UN Reports on Albinism & Human Rights

My name is Victoria Fowler and I am an undergraduate research assistant in my third year of nursing at Trinity Western University.  I have had the privilege of working alongside the Mothering and Albinism research team to gather information and raise awareness about this very important topic.  My role in this project has been to… Continue reading Summary of UN Reports on Albinism & Human Rights

Albinism Awareness Month in South Africa: An online webinar on mothers impacted by albinism

A panel of mothers impacted by albinism.  Participants from across the African continent.  Researchers presenting on our mothering and albinism project in South Africa (Dr. Sheryl Reimer-Kirkham), and on the psychosocial impact of albinism (Dr. Jennifer Kromberg). The UN Independent expert on albinism’s report on women and children with albinism (Ms. Ikponwosa Ero). Expert facilitation… Continue reading Albinism Awareness Month in South Africa: An online webinar on mothers impacted by albinism

In Conversation with Two of South Africa’s Leaders on Albinism: Nomasonto Mazibuko & Dr. Jennifer Kromberg

Nomosonto Mazibuko, a teacher, and Jennifer Kromberg, an academic, in conversation about their relationship while working in the Albinism field in South Africa. Both are collaborators on the Mothering and Albinism project. A long time ago, in about 1972, in Johannesburg, South Africa, Nomosonto (NM) and Jennifer (JK) met. NM was initially a teacher with… Continue reading In Conversation with Two of South Africa’s Leaders on Albinism: Nomasonto Mazibuko & Dr. Jennifer Kromberg

Researcher Vantage Point: Reflections from My Master’s Defense

Emma Strobell defended her Master’s thesis, “Exploring the Experience of Mothers who have Children with Albinism in Tanzania:  A Critical Ethnography” (see abstract below) on March 16, 2020 and offers her reflections here: Dr. Barbara Astle, Emma Strobell, Dr. Sheryl Reimer-Kirkham (left to right), & Dr. Sonya Sharma (center) As I defended my thesis research,… Continue reading Researcher Vantage Point: Reflections from My Master’s Defense

International Albinism Awareness Day, 2020: Made to Shine

Tomorrow, Saturday, June 13, 2020, marks the 5th annual celebration of International Albinism Awareness Day (IAAD). This years' theme is 'Made to Shine', "chosen to highlight the qualities of persons with albinism around the word" (facebook.com/albinismday, February 24, 2020). On December 18, 2014, the United Nations formally declared June 13 IAAD (UN Resolution 69/170), acknowledging… Continue reading International Albinism Awareness Day, 2020: Made to Shine