Author: Meghann Buyco

Three non-governmental organizations, the Centre for Human Rights (University of Pretoria), the Institute for Human Rights and Development in Africa (IHRDA) and the Legal and Human Rights Centre (LHRC), filed a case (Application No. 019/2018) on January 26th, 2018 to the African Court on Human and Peoples’ Rights against the Republic of Tanzania in regards… Continue reading The African Court on Human and Peoples’ Rights rules Tanzania Violated the Rights of Persons with Albinism

The University of Pretoria publishes a digital research magazine called Re.Search Magazine featuring future-focused, multi-, inter-, and transdisciplinary research that has global impact. Each issue, they highlight the multiplicity and impactful research of the University of Pretoria community and their collaborators. They promote innovation and multifaceted approaches to their research to explore and address global… Continue reading Mothering & Albinism Featured in the Re.Search Magazine

The Mothering and Albinism project has six student interns for 2023-2024, three from Ghana and three from Canada (to read about them, click here). While they have been busy contributing to our research on a video analysis on mothers and carers’ experiences on the birth of a baby with albinism (forthcoming paper), they have also… Continue reading “Meet the Author/Advocate” Seminars with the Student Interns

Puleng Molebatsi, a person with albinism, is a radio and television content producer, actor, and activist in South Africa. She is well known as the radio host to “The Out and About and Tech Africa” on Channel Africa. This year, 2023, in partnership with the Mothering and Albinism research project, she directed the film titled… Continue reading Film Project: A Conversation with Puleng Molebatsi in Filming “Mothering and Albinism in South Africa”

The Mothering and Albinism Research-Advocacy-Policy Network facilitated a Public Forum in Pretoria on October 2nd, 2023 to share the findings of our project on the resilience of South African mothers affected by albinism, whether they have albinism themselves or have children with albinism. The Forum was in partnership between the University of Pretoria's Health Science department… Continue reading Mothering and Albinism: Public Forum in Pretoria, South Africa

Research on siblings and albinism, the focus of my (Meghann Buyco) recent thesis, is long overdue. There has been increased global attention and research on albinism but very little remains known about the experiences of albinism between siblings. Thus, this past year, I was privileged to hear persons with albinism and their siblings share their stories… Continue reading Conducting Research on Albinism and Siblings in Africa: Reflecting Deeply on my Positionality

Listening to the stories of mothers who have given birth to a baby with albinism is an obvious place to start the next chapter of our research on A Human Rights and Equity-Oriented Response to the Birth Stories of Families Impacted by Albinism in Africa (see here for more information). We recently gathered with mothers,… Continue reading Birthing Stories Sharing Circle

Photo Credit: White Ebony Collection Multiple planetary challenges face humanity, including the COVID-19 pandemic, climate change, and biodiversity loss, which intimately affect the health of people and the planet Climate change is considered the greatest health threat of the 21st century. People living with disability, poverty, and unemployment are further structurally and disproportionately impacted by the… Continue reading Climate Change on Persons with Albinism