Author: Emma Strobell

As you will recall, in Part I of the ‘Re-imagining virtual field research during a global pandemic’ blog (March 2021), we described the shifts in our data collection approaches to remote interaction and conducting virtual research due to the global pandemic, aligning with the Canadian Coalition for Global Health (CCGHR) Principles (2015).  This framework guides… Continue reading Re-imagining virtual field research during a global pandemic: Shifting methods – Part II

I.K., United Nations, Geneva (Photo Credit: Harry Freeland, Standing Voice ) Ikponwosa Ero (I.K.) was designated as the first United Nations Independent Expert on the enjoyment of human rights by persons with albinism in June of 2015. During her six years on the mandate, she initiated movements in various sectors and collaborated with stakeholders in… Continue reading Congratulations, Ikponwosa Ero!

Every year since 2015, global communities celebrate June 13 as International Albinism Awareness Day. A day established by a United Nation's General Assembly resolution passed on December 18, 2014 to celebrate persons with albinism and their accomplishments throughout the world while raising awareness of albinism. As a team we will pause on June 13 to… Continue reading June 13: International Albinism Awareness Day #StrengthBeyondAll Odds

The following is a conversation between Mpho Tjope (MT), Founder & Director of Albinism Advocacy for Access South Africa & Chairperson of the South Africa Albinism Taskforce and Emma Strobell (ES), Project Coordinator for the Mothering & Albinism project. ES: Where do you call home? MT: I was born and raised in Delportshoop, Northern Cape,… Continue reading Together for change: In conversation with Mpho Tjope of Albinism Advocacy for Access

Conducting research in three countries with team members from eight universities and three civil society organizations (CSOs) makes for a rather complicated Human Research Ethics Board (HREB) approval process.  Rightly so.  To conduct global health research, especially in contexts of varying resources, colonial legacies, and histories of research that have not tended to local concerns,… Continue reading In Advance: Tending to Human Research Ethics (Part I)

My name is Victoria Fowler and I am an undergraduate research assistant in my third year of nursing at Trinity Western University.  I have had the privilege of working alongside the Mothering and Albinism research team to gather information and raise awareness about this very important topic.  My role in this project has been to… Continue reading Summary of UN Reports on Albinism & Human Rights

A panel of mothers impacted by albinism.  Participants from across the African continent.  Researchers presenting on our mothering and albinism project in South Africa (Dr. Sheryl Reimer-Kirkham), and on the psychosocial impact of albinism (Dr. Jennifer Kromberg). The UN Independent expert on albinism’s report on women and children with albinism (Ms. Ikponwosa Ero). Expert facilitation… Continue reading Albinism Awareness Month in South Africa: An online webinar on mothers impacted by albinism

Nomosonto Mazibuko, a teacher, and Jennifer Kromberg, an academic, in conversation about their relationship while working in the Albinism field in South Africa. Both are collaborators on the Mothering and Albinism project. A long time ago, in about 1972, in Johannesburg, South Africa, Nomosonto (NM) and Jennifer (JK) met. NM was initially a teacher with… Continue reading In Conversation with Two of South Africa’s Leaders on Albinism: Nomasonto Mazibuko & Dr. Jennifer Kromberg