Mothering & Albinism

The Mothering and Albinism Research-Advocacy-Policy Network facilitated a Public Forum in Pretoria on October 2nd, 2023 to share the findings of our project on the resilience of South African mothers affected by albinism, whether they have albinism themselves or have children with albinism. The Forum was in partnership between the University of Pretoria's Health Science department… Continue reading Mothering and Albinism: Public Forum in Pretoria, South Africa

An exciting aspect of our Birthing Stories project is the involvement of undergraduate and graduate students as interns. In 2023, students from Ghana and Canada will work with researchers and advocates to learn firsthand about how research can contribute to the protection of human rights for mothers impacted by albinism. The interns will engage in… Continue reading Birthing Stories Project: Student Interns 2023

Research on siblings and albinism, the focus of my (Meghann Buyco) recent thesis, is long overdue. There has been increased global attention and research on albinism but very little remains known about the experiences of albinism between siblings. Thus, this past year, I was privileged to hear persons with albinism and their siblings share their stories… Continue reading Conducting Research on Albinism and Siblings in Africa: Reflecting Deeply on my Positionality

The International Council of Nurses (ICN, n.d.), a federation of more than 130 national nurses associations, hosted this year’s Congress in Montreal, Canada with an attendance of about 6,000 nurses from all over the world (ICN, 2023). Our Mothering and Albinism team presented our important research work on albinism and human rights through a presentation… Continue reading Presenting on Albinism at the International Council of Nurses 2023

I began my final year of my Master of Science in Nursing Degree at Trinity Western University knowing that I wanted to focus my capstone project on global health and mother/child health. Dr. Reimer-Kirkham, my supervisor, invited me to complete a Knowledge Translation (KT) project related to the Mothering and Albinism project. Given my background… Continue reading Respectful Maternity Care and Albinism: A Knowledge Translation Project

Listening to the stories of mothers who have given birth to a baby with albinism is an obvious place to start the next chapter of our research on A Human Rights and Equity-Oriented Response to the Birth Stories of Families Impacted by Albinism in Africa (see here for more information). We recently gathered with mothers,… Continue reading Birthing Stories Sharing Circle

Photo Credit: White Ebony Collection Multiple planetary challenges face humanity, including the COVID-19 pandemic, climate change, and biodiversity loss, which intimately affect the health of people and the planet Climate change is considered the greatest health threat of the 21st century. People living with disability, poverty, and unemployment are further structurally and disproportionately impacted by the… Continue reading Climate Change on Persons with Albinism

In the past decade, the human rights violations, ranging from stigma and discrimination to acts of violence and attacks, experienced by persons with albinism have reached global attention, calling for immediate solutions and longer-term interventions to focus on the root causes. In April 2015, the Human Rights Council adopted the A/HRC/RES/28/6 resolution without a vote… Continue reading Our Research-Advocacy-Policy Transdisciplinary Network

The Mothering and Albinism project team expresses our deep regrets at the recent passing of Dr. Bhekisisa Maxwell Thabethe. He was the chairperson for organizations such as the National Albinism Task Force, Albinism Society of South Africa, and Albinism Society KwaZulu-Natal. With his PhD in Education (his dissertation is titled Learning of mechanical systems in… Continue reading In Memoriam: Dr. Bhekisisa Maxwell Thabethe