Mapping patterns of resilience at the juncture of gender, colourism, religion, and human rights
The Mothering and Albinism research project is a partner of the Africa Albinism Network (AAN), aiming to protect and promote the rights of persons with albinism and their families. The Africa Albinism Network (AAN) hosted the Women’s Learning Forum in Nairobi, Kenya, from May 28 to 30, 2024. This event brought together 28 women impacted… Continue reading Empowering Female Leaders with Albinism: Reflections from the 2024 AAN Women’s Learning Forum
The photo was taken on August 29, 2024, at The Aga Khan University after a fruitful discussion between the student interns of the Mothering & Albinism 2024 cohort (Ackremson Majaliwa and Augustine Gerald) with mentor Dr. Eunice Siaity-Pallangyo from Aga Khan University, Tanzania, and albinism and disability advocate and team member, Ms. Perpetua Senkoro from… Continue reading Tanzanian Student Interns (2024) in Meaningful Discussion on Albinism
We are excited to introduce to you our second cohort of interns - eight students who are joining the Mothering & Albinism network for 2024-2025. This year, we have a diverse group of students representing the four countries in our Birthing Stories project: Ghana, South Africa, Tanzania and Canada. Each intern is assigned to one… Continue reading Birthing Stories Project: Student Interns 2024
The University of Pretoria publishes a digital research magazine called Re.Search Magazine featuring future-focused, multi-, inter-, and transdisciplinary research that has global impact. Each issue, they highlight the multiplicity and impactful research of the University of Pretoria community and their collaborators. They promote innovation and multifaceted approaches to their research to explore and address global… Continue reading Mothering & Albinism Featured in the Re.Search Magazine
We are a group of researchers and advocates from Canada, South Africa, Tanzania, Ghana, Nigeria, Zambia, and England. We are supporting the United Nations Independent Expert mandate on the enjoyment of human rights by persons with albinism through research. We have conducted research on albinism and human rights since 2015. We are currently conducting a… Continue reading Birthing Stories of Families Impacted by Albinism in Canada: Inviting Participants
https://www.youtube.com/watch?v=FiO380Dm97c The Mothering and Albinism research project is a partner of the Africa Albinism Network (AAN), aiming to protect and promote the rights of persons with albinism and their families. Recently, the AAN published a video featuring a decade of collective progress of the albinism movement, highlighting key milestones in Africa and globally. The video starts… Continue reading Africa Albinism Network Highlights the 10 Years of #IAAD (International Albinism Awareness Day): A Decade of Collective Progress
The Mothering and Albinism project has six student interns for 2023-2024, three from Ghana and three from Canada (to read about them, click here). While they have been busy contributing to our research on a video analysis on mothers and carers’ experiences on the birth of a baby with albinism (forthcoming paper), they have also… Continue reading “Meet the Author/Advocate” Seminars with the Student Interns
In celebrating International Albinism Awareness Day, we highlight the successful forum hosted by Africa Albinism Network, empowering female leaders with albinism in Africa. Photo credit: Africa Albinism Netwrok Within the albinism movement and civil society at large, men have traditionally occupied leadership positions, leaving little space for the development of women’s voices and leadership. A… Continue reading Empowering Female Leaders with Albinism
Puleng Molebatsi, a person with albinism, is a radio and television content producer, actor, and activist in South Africa. She is well known as the radio host to “The Out and About and Tech Africa” on Channel Africa. This year, 2023, in partnership with the Mothering and Albinism research project, she directed the film titled… Continue reading Film Project: A Conversation with Puleng Molebatsi in Filming “Mothering and Albinism in South Africa”
As a network of scholars and advocates from multiple disciplinary fields and various sectors, we are bringing our knowledges and skills together to address a complex problematic, that of protecting and promoting the human rights of mothers impacted by albinism. This challenge cannot be solved by any one disciplinary stance, methodological approach or practical skillset.… Continue reading The strength of our research-advocacy-policy network in action: Reflections on our Engagement Workshop in Pretoria, October 2-4, 2023
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